We have had a couple of long weeks trying to figure out what is happening with Jess. Her illness continues and in many ways is getting worse and the C Diff that we thought was the culprit is gone. They have run a battery of tests, getting many results but none of them leading to a definitive diagnosis or treatment, so they continue to poke her, scan her and (TMI) test her poop. They have found that she has severe anemia, but really I'm surprised she has any blood left after all the tubes they have taken from her little arms.
We are also waiting to get into a Hematologist at the University Hospital. They move a little slower than the rest of the medical system so we hope to hear back from them this week.
The De Ja Vu moment continues as I have the same conversation with my daughter now as I did then. "Why can't they find out what is wrong?" "They think I'm faking!!" "I'm tired of this, I just want to be normal." Unfortunately as I try to listen, understand and encourage I have no more answers this time than I did last. I just know I'm so impressed with the maturity, resilience and optimism that each of these beautiful girls possess. The Lord continues to refine them so they can be strong and faithful in accomplishing what ever mission they have been sent here to fulfill. I'm proud to be their mother!!