Sunday, November 11, 2012

De Ja Vu Moment

As Jessi and I were walking on the path leading towards the west entrance of the Holy Cross Hospital to meet with a specialist I experienced a "De Ja Vu" moment.  Probably 12 years ago I was walking the same pathway with a very sick daughter into the hospital to meet with a specialist to see if we could get some answers to an unknown illness.  Not only the same path, but the same door, same elevator, and same frustration the only thing changed was a different daughter and different illness.  The irony of the moment struck me hard.  Who would of ever thought that I would be experiencing that time once again?  Unknown sickness and disability is a tough road.  Knowing what you are dealing with, no matter what it is, is less stressful.
We have had a couple of long weeks trying to figure out what is happening with Jess.  Her illness continues and in many ways is getting worse and the C Diff that we thought was the culprit is gone.  They have run a battery of tests, getting many results but none of them leading to a definitive diagnosis or treatment, so they continue to poke her, scan her and (TMI) test her poop.  They have found that she has severe anemia, but really I'm surprised she has any blood left after all the tubes they have taken from her little arms.
These are the first set of orders of three days of testing in Lakeview Hospital.  They also did a 1 1/2 hour gall bladder test, abdominal ultrasound, chest x ray,  MRI and several more blood draws over the next few days.

This is what was ordered after we met with the Infectious Disease Doctor at Holy Cross.
We are also waiting to get into a Hematologist at the University Hospital.  They move a little slower than the rest of the medical system so we hope to hear back from them this week.
The De Ja Vu moment continues as I have the same conversation with my daughter now as I did then.  "Why can't they find out what is wrong?"  "They think I'm faking!!"  "I'm tired of this, I just want to be normal."  Unfortunately as I try to listen, understand and encourage I have no more answers this time than I did last.  I just know I'm so impressed with the maturity, resilience and optimism that each of these beautiful girls possess.  The Lord continues to refine them so they can be strong and faithful in accomplishing what ever mission they have been sent here to fulfill.  I'm proud to be their mother!!

1 comment:

  1. Wow! Jessi is my hero! I can't believe she endures all she does and still can manage to laugh and smile. Love you guys! I need to come visit real soon!!